Ethics of Using Digital Adherence Monitoring Technologies to Support Tuberculosis Medication

  • Acronym: DATs Ethics Study
  • Effective start/end date: July 01st, 2021 June 01st, 2022
  • Funder: US National Institute of Health (NIH)/Fogarty International Centre Grant number: K43TW010388-05S1
  • Type: Capacity Building Intevation Research

Overview

Overview: Although digital adherence technologies (DATs) are promising patient-centered strategies for monitoring TB medication adherence, ethical opportunities and concerns associated with using DATs in monitoring TB medication adherence (e.g., autonomy, beneficence) have not been empirically examined. In response to NOT-OD-21-020: Administrative Supplement for Research and Capacity Building Efforts Related to Bioethical Issue), we seek to broaden the scope of our parent DATs study (K43TW010388) by proposing a DATs Ethics study in which we use the consolidated Framework for Implementation Research to qualitatively assess experiences and views of DATs Study participants, TB clinic staff, and relevant health policy makers about experienced and emerging novel DATs.

We develop a practical initial framework for implementation of these technologies in Uganda drawing from the identified ethical opportunities and challenges, and develop and implement a curriculum for “Ethics Research through Implementation Science”.

Grant number: K43TW010388-05S1


Participants

  • Dr. Angella Musiimenta PhD: Senior Lecturer and Deputy Dean Faculty of Computing and Informatics - Mbarara University of Science and Technology (Principal Investigator).
  • Dr. Schmidt Harald Thomas PhD: Assistant Professor of Medical Ethics and Health Policy - University of Pennsylvania USA (Co-Investigator)
  • Jessica Haberer MD: Associate Professor at Harvard Medical School - Boston. MA and Director of Research at Center for Global Health - Massachusetts General Hospital Boston MA (Mentor)
  • Erisa Sabakaki Mwaka - Makerere University (Mentor)

Partners


Publications